About

The Information Point for Centronuclear and Myotubular Myopathy was established in 2001 to raise awareness of the rare neuromuscular conditions known as centronuclear and myotubular myopathy.

The stories which appear on these pages have been contributed by members of the centronuclear and myotubular myopathy community for The Information Point newsletter Our World.

To learn more about the conditions, please visit our main website.

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